If you have mystery, rare or complicated health issues, it can be overwhelming to tell your story.
It's hard to tell a complex story.
At appointments, you feel pressured to remember what happened and tell your story in the right order. The details are often trapped in old medical records. Especially when visiting a new doctor, it's challenging to tell your whole life story.
You’re forced to repeat your story over and over.
It’s exhausting. With each new person you see, or each new doctor who walks into your room, you have to start from scratch. And the details often get lost in translation.
You feel like people don’t believe you.
People with invisible symptoms often feel judged or not taken seriously, and they end up jumping from doctor to doctor in an effort to get a diagnosis.
It's hard for your doctors to create a mental picture of what happened.
People can only keep about four things in their short-term memory at once. So doctors listening to a complex story are more likely to lose track of key information and make an error.
Don't give up — tell a visual story instead.
Hi, I'm Katie. I'm a designer and autoimmune patient – here's a little more about me. I can help you organize and visualize your health story so that you can understand what happened, communicate better, and tell your story with confidence.
I listen to your whole story, help you prioritize, and create visuals to reflect what you've told me. These usually include:
A detailed timeline of your whole health history
Symptom drawings or maps
A neat and organized summary